H*3036 Session 123 (2019-2020)
H 3036 {Rat #75, Act #55 of 2019} General Bill, By McCravy, Parks, West, Gagnon,
Martin, Hiott, Burns, Huggins, G.R.Smith, Trantham, Ridgeway, Thayer, W.Cox,
Toole, Johnson, Jefferson, Clary, Gilliard and Henegan
Similar(S 225) AN ACT TO AMEND THE CODE OF LAWS OF SOUTH CAROLINA, 1976, BY ADDING SECTION
44-37-35 SO AS TO REQUIRE NEONATAL TESTING FOR CERTAIN GENETIC DISORDERS AND
DISEASES AND FOR OTHER PURPOSES; AND TO AMEND SECTION 44-37-30, RELATING TO
NEONATAL TESTING OF CHILDREN, SO AS TO REQUIRE THE DEPARTMENT OF HEALTH AND
ENVIRONMENTAL CONTROL TO ESTABLISH A NEWBORN SCREENING ADVISORY COMMITTEE TO
REVIEW THE DESIRABILITY AND ADVISABILITY OF INCLUDING ADDITIONAL METABOLIC,
GENETIC, AND CONGENITAL DISORDERS IN CERTAIN NEONATAL TESTING. - ratified
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12/18/18 House Prefiled
12/18/18 House Referred to Committee on Medical, Military,
Public and Municipal Affairs
01/08/19 House Introduced and read first time (House Journal-page 64)
01/08/19 House Referred to Committee on Medical, Military,
Public and Municipal Affairs (House Journal-page 64)
01/22/19 House Member(s) request name added as sponsor: Hiott
01/23/19 House Member(s) request name added as sponsor: Burns, Huggins
01/31/19 House Member(s) request name added as sponsor: G.R.Smith
02/05/19 House Member(s) request name added as sponsor: Trantham
02/06/19 House Member(s) request name added as sponsor: Ridgeway
02/12/19 House Member(s) request name added as sponsor: Thayer, W.Cox
03/11/19 House Member(s) request name added as sponsor: Toole
03/12/19 House Member(s) request name added as sponsor: Johnson
03/28/19 House Member(s) request name added as sponsor:
Jefferson, Clary
04/03/19 House Member(s) request name added as sponsor: Gilliard
04/04/19 House Committee report: Favorable with amendment
Medical, Military, Public and Municipal Affairs
(House Journal-page 2)
04/05/19 Scrivener's error corrected
04/09/19 House Member(s) request name added as sponsor: Henegan
04/10/19 House Amended (House Journal-page 39)
04/10/19 House Read second time (House Journal-page 39)
04/10/19 House Roll call Yeas-111 Nays-0 (House Journal-page 40)
04/11/19 House Read third time and sent to Senate
(House Journal-page 68)
04/17/19 Senate Introduced and read first time (Senate Journal-page 5)
04/17/19 Senate Referred to Committee on Medical Affairs
(Senate Journal-page 5)
04/25/19 Senate Committee report: Favorable Medical Affairs
(Senate Journal-page 4)
05/07/19 Senate Read second time (Senate Journal-page 55)
05/08/19 Senate Amended (Senate Journal-page 62)
05/08/19 Senate Read third time and returned to House with
amendments (Senate Journal-page 62)
05/08/19 Senate Roll call Ayes-41 Nays-1 (Senate Journal-page 62)
05/09/19 House Senate amendment amended (House Journal-page 111)
05/09/19 House Returned to Senate with amendments
(House Journal-page 111)
05/09/19 Senate Concurred in House amendment and enrolled
(Senate Journal-page 70)
05/13/19 Ratified R 75
05/16/19 Signed By Governor
05/31/19 Effective date 05/16/19
06/05/19 Act No. 55
H. 3036
(A55, R75, H3036)
AN ACT TO AMEND THE CODE OF LAWS OF SOUTH CAROLINA, 1976, BY ADDING SECTION 44-37-35 SO AS TO REQUIRE NEONATAL TESTING FOR CERTAIN GENETIC DISORDERS AND DISEASES AND FOR OTHER PURPOSES; AND TO AMEND SECTION 44-37-30, RELATING TO NEONATAL TESTING OF CHILDREN, SO AS TO REQUIRE THE DEPARTMENT OF HEALTH AND ENVIRONMENTAL CONTROL TO ESTABLISH A NEWBORN SCREENING ADVISORY COMMITTEE TO REVIEW THE DESIRABILITY AND ADVISABILITY OF INCLUDING ADDITIONAL METABOLIC, GENETIC, AND CONGENITAL DISORDERS IN CERTAIN NEONATAL TESTING.
Be it enacted by the General Assembly of the State of South Carolina:
Required neonatal genetic testing
SECTION 1. Chapter 37, Title 44 of the 1976 Code is amended by adding:
"Section 44-37-35. (A) Neonatal testing conducted pursuant to Section 44-37-30 must include testing for the following:
(1) Krabbe disease;
(2) Pompe disease; and
(3) Hurler syndrome.
(B) The department shall require additional lysosomal storage disorders to be tested upon the recommendations of the Newborn Screening Advisory Committee and in accordance with Section 44-37-30 pursuant to a duly promulgated regulation as testing for such disorders becomes available."
Newborn Screening Advisory Committee, creation and duties
SECTION 2. Section 44-37-30 of the 1976 Code is amended by adding an appropriately lettered subsection at the end to read:
"( ) The department shall establish the Newborn Screening Advisory Committee to review the feasibility and advisability of including additional metabolic, genetic, and congenital disorders in the neonatal testing conducted pursuant to this section. The committee must be multidisciplinary and composed of members deemed appropriate by the department."
Time effective
SECTION 3. This act takes effect upon approval by the Governor. Implementation of the act is contingent upon available funding from public sources.
Ratified the 13th day of May, 2019.
Approved the 16th day of May, 2019.
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