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S. 31
STATUS INFORMATION
Concurrent Resolution
Sponsors: Senator Grooms
Document Path: l:\s-res\lkg\004myal.kmm.lkg.docx
Introduced in the Senate on January 8, 2019
Introduced in the House on March 7, 2019
Adopted by the General Assembly on March 7, 2019
Summary: Myalgic Encephalomyelitis Awareness Day
HISTORY OF LEGISLATIVE ACTIONS
Date Body Action Description with journal page number
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12/12/2018 Senate Prefiled
12/12/2018 Senate Referred to Committee on Medical Affairs
1/8/2019 Senate Introduced (Senate Journal-page 52)
1/8/2019 Senate Referred to Committee on Medical Affairs
(Senate Journal-page 52)
3/5/2019 Senate Polled out of committee Medical Affairs
(Senate Journal-page 14)
3/5/2019 Senate Committee report: Favorable Medical Affairs
(Senate Journal-page 14)
3/6/2019 Scrivener's error corrected
3/6/2019 Senate Adopted, sent to House (Senate Journal-page 18)
3/7/2019 House Introduced, adopted, returned with concurrence
(House Journal-page 68)
View the latest legislative information at the website
VERSIONS OF THIS BILL
Indicates Matter Stricken
Indicates New Matter
POLLED OUT OF COMMITTEE
MAJORITY FAVORABLE
March 5, 2019
S. 31
Introduced by Senator Grooms
S. Printed 3/5/19--S. [SEC 3/6/19 3:01 PM]
Read the first time January 8, 2019.
To whom was referred a Concurrent Resolution (S. 31) to recognize May 12, 2019, as "Myalgic Encephalomyelitis Awareness Day" and the month of May, annually, as "Myalgic Encephalomyelitis Awareness Month", etc., respectfully
Has polled the Concurrent Resolution out majority favorable.
TO RECOGNIZE MAY 12, 2019, AS "MYALGIC ENCEPHALOMYELITIS AWARENESS DAY" AND THE MONTH OF MAY, ANNUALLY, AS "MYALGIC ENCEPHALOMYELITIS AWARENESS MONTH" IN SOUTH CAROLINA IN ORDER TO HELP SPREAD AWARENESS OF THE DISEASE AND THE NEED FOR INCREASED RESEARCH FUNDING AND TO SUPPORT INDIVIDUALS LIVING WITH MYALGIC ENCEPHALOMYELITIS.
Whereas, Myalgic Encephalomyelitis, sometimes called Chronic Fatigue Syndrome, is a neuroimmune disease characterized by overwhelming fatigue, "brain fog," pain, post-exertional malaise, headaches, cardiac symptoms, immune dysfunction, hypometabolism, lack of energy production at a cellular level, orthostatic intolerance, severe dizziness and balance problems, increased morbidity, and a higher risk of suicide due to lack of treatment and neglect; and
Whereas, perhaps the most common chronic disease, Myalgic Encephalomyelitis afflicts an estimated 15,000 to 38,000 South Carolina residents of all ages, races, and sexes; 836,000 to 2.5 million Americans; and 17 to 20 million worldwide; and
Whereas, Myalgic Encephalomyelitis has been found by the National Academy of Medicine to be "a serious, chronic, complex, and systemic disease that frequently and dramatically limits the activities of affected patients." One-quarter of patients are housebound or bedridden, while one-half to three-quarters of patients are unable to work or attend school, and patients are often ill for years or a lifetime; and
Whereas, the economic impact of Myalgic Encephalomyelitis is estimated to be $257 million to $363 million per year in South Carolina, in medical expenses and lost productivity, and $17 billion to $24 billion per year in the United States; and
Whereas, the National Academy of Medicine has stated that there is a "paucity of research to date," with grossly inadequate research funding that "does not reflect disease burden, prevalence, and economic cost to society"; and
Whereas, given the lack of research, there is no diagnostic test and no federal Food and Drug Administration-approved treatments. The Centers for Disease Control and Prevention estimate that eighty-four percent of those with Myalgic Encephalomyelitis are either misdiagnosed or not diagnosed at all, and most patients have no access to doctors with expertise in the disease; and
Whereas, increased public awareness of the severity of Myalgic Encephalomyelitis will help alleviate any misplaced stigma and discrimination and will lead to increased funding for research, treatment, and clinical education; and
Whereas, the members of the South Carolina General Assembly urge state agencies, medical service providers, health care agencies, research facilities, medical schools, and federal agencies to work toward increasing clinical care, supportive care, and medical education and research funding for Myalgic Encephalomyelitis. The General Assembly also encourages schools, colleges, and media organizations to inform the public about Myalgic Encephalomyelitis. Now, therefore,
Be it resolved by the Senate, the House of Representatives concurring:
That the members of the South Carolina General Assembly, by this resolution, recognize May 12, 2019, as "Myalgic Encephalomyelitis Awareness Day" and the month of May, annually, as "Myalgic Encephalomyelitis Awareness Month" in South Carolina in order to help spread awareness of the disease and the need for increased research funding and to support individuals living with Myalgic Encephalomyelitis.
This web page was last updated on March 8, 2019 at 1:19 PM